Tuesday, March 13, 2012

Long day

Today has been a long day for dad. Unfortunately his white cell count has come down a little bit. He received blood, platelet, and plasma transfusions.

The doctor is somewhat concerned about possible internal bleeding. It is one explanation for his blood counts. Dad is also still struggling with his lungs. Part of the problem is that he doesn't have enough energy to cough hard enough to get the fluid out.

Dad's body is really aching. Not being able to move around on his own, and being confined to a hospital bed has left him in pain most of the time.

On the bright side, his esophagus is slowly getting better. And I think that his coloring looks better, too.

We would like to ask you all to pray for my dad's continued healing. Please specifically pray for his lungs, esophagus, and that he will not have internal bleeding.

Thank you all for your help during this trial. We love you all so much.

Sunday, March 11, 2012

Rough week

As I sit here in my dad's hospital room today, I can't help but think of all of our blessings. And I know that they have come to us as an answer to prayers from around the world. From all of you.

This past week as been a very difficult one, indeed. Dad has been so very sick. His lungs have been a great point of concern. But we have been blessed to see some improvement.

Another major problem for dad, and the one causing him the most distress and pain has been the infection in his esophagus. He has been in extreme pain from this infection, unable to swallow anything, and virtually unable to speak.

We have seen some gradual improvements in this area. Today he was able to be spoon-fed an 8oz can of glucerna. A whopping 220 calories! We are extraordinarily thankful for this improvement. It gives us such encouragement. His voice is a bit stronger, too.

The other blessing that we are seeing is his white cell count is continuing to rise. When he was admitted to the hospital they were 0.1 and today they are 3.3! In eleven days we have witnessed this miracle. A white cell count of 4 is considered low, but we see his body making these small (but major) improvements.

Thank you all for your prayers, thoughts, good wishes, good deeds and kindnesses. We love you all so very much and could not get through this without your support.

I love reading my parents your comments, so if you have a moment, please leave one. They mean more to us than you could ever know.

Thursday, March 8, 2012

in the hospital

a week ago today my dad was admitted to ucsd thornton hospital.

we took him in the middle of the night to the emergency room because he was running a fever.  with such a low white blood cell count any fever was dangerous.  he was also experiencing a lot of pain in his sternum area and his lungs sounded pretty bad.

long story short, they have been treating him for pnuemonia and esophogial candidia.  they performed an endoscopy and saw the most severe case of yeast in his esphogus that they have ever seen.  he also has ulcers down his esophogus.  he has not been able to eat in at least a week and a half, and talking is also too painful. 

his white cell count has come up a very tiny bit, which is encouraging us.  however, they have a long way to go.  they are treating his esophogus, but so far he has had no relief.  since his white cells are so low he cannot have visitors.  even his nurses have to wear masks and gloves.

scott flew in last thursday, the day that dad was admitted to the hospital.  he left yesterday to go back home.  we sure loved having him here.  and alex and hayley were here with their little boy the week before.

yesterday, as i was leaving the hospital, i asked my dad what i could do for him.  he asked me to pray specifically for his esophogus and his white blood cells, and to pass that along to others.  so, will you please join us in this prayer???

we believe in miracles.  we believe that God gives miracles, and can give us one now.  please join us in praying for healing for his esophogus, his lungs, and that his white cell count will rise up quickly.  and i am praying that my dad will be completely healed from his brain tumors.

thank you for your love and support.

Thursday, March 1, 2012

Setback

This morning my dad was admitted to UCSD Hospital with a fever. The doctors suspect pneumonia but we will know more later. Along with other complications such as severely low white cells, he will be in the hospital for a bit.  We thank you all for your continued love and prayers.

Thursday, February 23, 2012

the rollercoaster ride continues

it has been too long since my last post.  my apologies.  so let's pick up here and move on.  thanks for following us along on this journey and lending your support to my dad and our family.

instead of recapping everything that has happened in the last 2 weeks, i'll give you the highlights:

dad has had to temporarily hold off on his chemotherapy due to low platelets.  he had a platelet transfusion last week, and on tuesday, which went well.  he also gets dehydrated easily, and has to be re-hydrated at the infusion center at ucsd from time to time.  the radiation has continued, and leaves him very exhausted. 

he is continuing to see small improvements in the mobility in his left arm and leg.  we are so encouraged by these tiny pieces of progress.  the doctor feels that the tumors must be shrinking in order to be recovering some movement. 

dad only has 4 more radiation treatments to go!!!  on the last day of his radiation he will be allowed to ring a big brass bell that hangs on the wall in the waiting room.  we have been waiting for that day and are really excited for it be here.

thank you to everyone for your prayers, words of encouragement, and your loving concern.  our family has been blessed by you all in countless ways. 

through all of these trials we continue to be reminded of our Heavenly Father's love for us.  He is aware of our every movement, and our every need.  He is blessing us and holding us up during this difficult time. 

if you would like to, please feel free to leave a comment below.  my parents love reading your notes of encouragement.

Sunday, January 29, 2012

over one-third down!

thanks for sticking by us, even though i haven't updated this blog in far too long.  we have been on a rollercoaster ride for sure!

friday night found us at the fallbrook emergency room.  my dad's feet were both purple and ice cold, and we were concerned about possible blood-clots.  after being there for about 5 hours the doctor ruled out blood-clots, but did tell us to follow up with a doctor to further monitor the blood flow in my dad's legs.  we are hoping to get in to a doctor at UCSD tomorrow about this situation.

last thursday the radiation doctor at UCSD lowered the amount of steroids my dad is taking.  the steroids help with the inflamation around the 2 tumors.  even with that reduction we have seen marked improvement on my dad's left side.  talk about blessings and miracles! 

dad has been able to move his left arm more, even twice lifting his arm off of the bed and onto his chest.  we are now seeing movement in dad's left leg as well!  sometimes he can move his left ankle back and forth, and up and down.  it is so exciting to see this because the neuro-oncologist was not originally very encouraging about my dad regaining mobility on his left side.  we are just thrilled!

as of last thursday my dad was one-third of the way done with the radiation and chemotherapy treatments.  we have renamed the chemo pills "tumor busters." 

the treatments are very hard on dad.  they leave him extremely exhausted.  driving him to and from ucsd each day is grueling for him.  but everytime he comes out of radiation he is so happy.  he knows that it is helping him and he is so thankful.  dad has lost about 50 pounds since his diagnosis.  the treatment has really reduced his appetite.  thanks to dear friends from church and other friends and family nearby, we are frequently blessed with lovely and healthy meals for our whole family.

we are humbled daily by the offerings of others.  just today someone left "love notes" and letters from people wishing my dad well.  people have brought over delicious treats, mailed beautiful letters, accompanied us to treatment, given my dad inspirational speeches to listen to, and zillions of other kindnesses.  it is special to me to see people be so loving to my parents.  i am brought to tears often by people's generosity.

thank you all for your continued support.  please continue to pray for my dad.  we believe in miracles and are seeing them unfold before us.  please feel free to leave comments here for my dad/family.  he really loves hearing the notes that people send.  they cheer him and touch his heart.

Thursday, January 19, 2012

miracles

since starting treatment my dad has received 5 radiation treatments and has been on chemotherapy for 7 days. 

we are seeing miracles take place before our very eyes.  not only can he squeeze his left hand a little bit, but he can move it up and down his chest a little, too.  and tonight he moved his left leg!  these are all small movements, but such huge accomplishments!!!

they thrill us so much!  we are excited to see his improvements and progression.

my dad is left very exhausted from the treatments.  but he is in good spirits.  thank you again for all of the love that you have shown to him and to our family.  we love you all!